Sofie is 27 and has been struggling with endometriosis since she was a youngster.
Now she’s informed Newsbeat she needs a complete hysterectomy – an operation to take away her womb – to assist ease the signs of her situation.
Lena Dunham – who’s suffered with endometriosis for years – revealed this week she’d had the operation.
Endometriosis is a situation which impacts one in 10 ladies and may trigger power ache, heavy durations, painful intercourse and melancholy.
“It is ache and discomfort, particularly across the time of your interval,” Sofie explains.
“Again ache, migraines and fatigue – additionally melancholy and anxiousness.
“It is absolutely the concern of being out with family and friends – and never having sanitary towels, spare underwear or ache remedy.
“That is why you will discover a lot of individuals with endometriosis are likely to cancel a lot of plans and actions with buddies.”
Like Lena Dunham, Sofie says she needs to have a hysterectomy so she will be able to take again management of her physique – and her life.
She has a six-year-old son Jacob who she says “is “completely superb” however she says having the ability to have him was “an enormous journey”.
Like many ladies with endometriosis, Sofie struggled to conceive and has had three miscarriages.
“I by no means wished multiple little one anyway, particularly when the signs and the negative effects of my endometriosis obtained worse.
“I needed to ask myself what was extra vital – having extra kids or being wholesome and being there for my son.
“If a hysterectomy takes away doubtlessly among the burden of my unhealthy well being, to me it is price doing that, to be blissful and wholesome for my son.”
In the intervening time, Sofie will get a month-to-month hormonal injection which she says helps to ease her signs.
She describes them as “completely horrific” and says the negative effects are “intense”.
“I hope that someday I can have a hysterectomy.”
What’s a hysterectomy and may it assist deal with endometriosis?
There’s presently no treatment for endometriosis however there are remedies that may assist ease the signs.
They embrace taking painkillers, hormone medicines and contraceptives and surgical procedure to chop away patches of endometriosis tissue.
A hysterectomy is a surgical process to take away the womb (uterus) and it could actually assist ease the signs of endometriosis.
Throughout a hysterectomy, the womb is eliminated and the affected person may additionally have her cervix or ovaries eliminated, relying on her private circumstances.
“A hysterectomy doesn’t treatment all signs of endometriosis and positively is just not a treatment for the entire illness,” marketing consultant gynaecologist Sanjay Vyas tells Newsbeat.
He says the process “could also be a part of the surgical therapy, however that must be tailor-made for particular person ladies.
“They could want extra advanced therapy.”
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