Requests for a medical hashish licence to assist a boy whose uncommon type of epilepsy improved after taking the drug have been denied by the Dwelling Workplace.
Six-year-old Alfie Dingley, from Kenilworth in Warwickshire, suffers as much as 30 violent seizures a day.
His mother and father wish to deal with him with medical hashish oil, which is against the law within the UK.
The Dwelling Workplace mentioned the drug “can’t be virtually prescribed, administered or equipped to the general public”.
A spokesperson added that it could actually solely be used for analysis.
Alfie’s mom, Hannah Deacon, mentioned “you have to battle on your children, I wish to know that I’ve executed the whole lot I can”.
Members of the all-party parliamentary group (APPG) on drug coverage reform is asking on the federal government to help with Alfie’s plight.
Ms Deacon mentioned Alfie went to the Netherlands to take a cannabis-based medicine in September.
She mentioned that whereas there, the medicine, prescribed by a paediatric neurologist, noticed his seizures cut back in quantity, period and severity.
At one level whereas within the UK, Alfie had three,000 seizures and 48 hospital visits in a yr, however whereas overseas he went 24 days with no single assault.
“It is very uncommon and really aggressive, there’s solely 9 boys on the planet with Alfie’s situation,” Ms Deacon mentioned.
“We by no means imagined how effectively it could work. He is only a six-year-old boy, he deserves a cheerful life. We have discovered one thing that makes him pleased and now we have to take that away.”
Ms Deacon mentioned his hashish dose was “very small” and he was taking three drops of the oil, which is made utilizing entire plant hashish.
Alfie’s mom mentioned the steroids he presently takes in hospital might finally trigger his organs to fail if he retains taking them on the price he’s.
“He would not know any totally different, he is had a really traumatic life. He is held down and injected,” she mentioned.
With the Dutch hashish medicine, it’s estimated Alfie would have about 20 seizures a yr.
He stayed along with his mother and father in a vacation camp within the Netherlands to obtain the remedy, however with out medical insurance coverage within the nation they needed to return house in January.
The APPG desires Dwelling Secretary Amber Rudd to difficulty a licence for him to proceed taking the medicine.
Group co-chair, Conservative MP Crispin Blunt mentioned: “It could be heartless and merciless to not enable Alfie to entry the medicine.
“Parliament actually should take a look at reforming our legal guidelines to permit entry to hashish for medical functions, which has enormous public help.”
The Dwelling Workplace mentioned it recognised that individuals with power ache and debilitating diseases are “seeking to alleviate their signs”.
A spokesperson added: “Nevertheless, it can be crucial that medicines are completely examined to make sure they meet rigorous requirements earlier than being positioned in the marketplace, in order that docs and sufferers are assured of their efficacy, high quality and security.
“Hashish is listed as a Schedule 1 drug, as in its uncooked kind it’s not recognised within the UK as having any medicinal profit and is subsequently topic to strict management restrictions.
“This implies it can’t be virtually prescribed, administered, or equipped to the general public within the UK, and may solely be used for analysis underneath a Dwelling Workplace licence.
“The Dwelling Workplace wouldn’t difficulty a licence to allow the non-public consumption of a Schedule 1 drug.”